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Epilepsy Advocate’s My Four Words Project

Posted on 19. Sep, 2012 by in Epilepsy, Mom - Parenting - Family

The “My Four Words” project was launched by Epilepsy Advocate and UCB earlier this year, but I didn’t participate until the other day when I received a reminder email. The project gives people who are living with epilepsy or have loved ones with the condition the opportunity to share their thoughts, feelings and experiences.

The catch? Right, you got it–your story has to be told with just four words. People have made beautiful posters and signs, many of which are featured here on the My Four Words Flickr photostream. My “My Four Words” sign is more of a note, but I feel that it accurately describes my adventures with epilepsy.

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2010 National Walk for Epilepsy

Posted on 10. Apr, 2010 by in Epilepsy, Girly Stuff, Mom - Parenting - Family

Saturday March 27th marked the 4th annual National Walk for Epilepsy in Washington, DC. Yeah, I know I’m late writing about it, but better late than never, right? By the way, I’m proud to announce that so far this year I have raised $380 for epilepsy awareness! I think that’s a great donation to the Epilepsy Foundation!

You probably know that breast cancer awareness is displayed with pink ribbons, but purple is the color for epilepsy awareness. I decided to have a chunk of my hair dyed purple for the Walk this year. I found a great new hairstylist in the area thanks to one of my new Twitter-buddies so I was able to get some cool purple hair. (Just so you know, calling around and asking salons if they will dye your hair purple gets you more nays than yays.) I’ve definitely gotten a few strange looks out in public, but I absolutely love it and it was a hit at the Walk because everyone knew what it was for.

PurpleEpilepsyAwareness

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2010 National Walk for Epilepsy

Posted on 14. Feb, 2010 by in Epilepsy, Mom - Parenting - Family

Once upon a time, I was an average, healthy 26 year-old woman. I had a part-time job at my husband’s office and I enjoyed going shopping by myself or going places with friends.  I had a brand-new convertible Beetle that I loved to drive.

That all changed when I began having unexplained seizures in 2005.

On an out-of-state vacation with my husband, I went to sleep with plans of visiting my grandmother the next morning. Instead, I woke up confused and afraid in a hospital bed. I had my first seizure in the hotel that evening.

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