Epilepsy Advocate Blogger Summit

Posted on 01. Nov, 2011 by in Epilepsy

Just shy of two weeks ago, I was lucky enough to take part in a blogger summit sponsored by Epilepsy Advocate and UCB. Epilepsy Advocate is a community of people that are living well with epilepsy. The group’s goal is to promote epilepsy awareness and help people understand that even though it definitely places some major roadblocks, it is possible to have a happy, healthy life while dealing with this neurological condition. UCB is a global pharmaceutical manufacturer known as The Epilepsy Company.

During the summit, I had the awesome opportunity to interact with other bloggers that are living with epilepsy, as well as several experts in the field, via phone and webcam. I was so impressed to “meet” the other bloggers,  including:

Mandy of My Life as Mandy… with Epilepsy

Jessica of Living Well with Epilepsy

Bryan of More Than Kids

Robert of Connecticut Epilepsy Advocate

Tiffany of The Epilepsy Network

Erica of Living in a Brainstorm

Friends and family–even doctors–can be sympathetic, but it’s somewhat refreshing to speak with people that understand exactly what it feels like to have epilepsy. People that know how scary it is to realize that you could have a seizure at any instant; people that understand just how frustrating it is to explain to others what is “wrong” with you; people that get just as frustrated about stigmas associated with epilepsy My anti-epileptic prescription is not cheap, to put it mildly, but I have been seizure-free for nearly four years and I’m thankful every single day.

Thanks again to Epilepsy Advocate and USB!

 

Epilepsy Advocate

 

 

 

 

 

 

 

UCB The Epilepsy Company

4 Responses to “Epilepsy Advocate Blogger Summit”

  1. bryan farley 2 November 2011 at 2:46 am #

    Melissa,

    Great to see your post. I think about your wonderful short purple hair… wish we could have a team haircut one year. If I don’t do it, I bet my daughter would cut color her hair purple. (Oh, I would do it too.)

    I am working on a new website that is a little more photography related. I added it to this post. I will keep my old one for a while too. I am planning a post about the blogger summit. I am waiting for some information and a little time.

    Great seeing you.

    bf

    • Melissa 9 November 2011 at 10:58 am #

      Hi Bryan,

      Sorry that I didn’t respond sooner. As I mentioned during the “meeting,” my own blog (unfortunately) sometimes takes a back seat to everyone else’s! I can change your website in my post if you’d like, or we can just leave it here in the comments.

      My husband and I created this epilepsy site awhile back, but it needs more content and images. Just another goal to work on!

      You could always take your daughter to the salon for father-daughter purple dye day! Heheheh!

  2. Jessica K Smith 10 November 2011 at 8:33 am #

    Melissa,
    Thanks for doing a piece on the summit. It was great to meet you beyond social media. The best part for me were the little similarities we had in common. Not as bloggers, but as people living with epilepsy.

    Best,
    Jessica

    • Melissa 10 November 2011 at 3:51 pm #

      Hi Jessica! Yes it was so nice to “meet” you outside of our little Twitter avatars! I definitely agree that it was a great experience to get together with other people that can understand what it feels like to live with this condition. Hopefully we can all keep spreading the word!

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